Celiac Disease Self-Care

by Valerie Polley | Jun 17, 2023 | 0 comments

If you’ve been diagnosed with celiac disease, you’re probably familiar with the gluten-free diet. For people with celiac disease, following a gluten-free diet is an essential part of managing the disease. But the gluten-free diet is quite restrictive, which can lead to feelings of treatment burnout. That’s where celiac disease self-care comes in.

For people with celiac disease, self-care is incredibly important for managing the emotional side effects of following such a restrictive diet. This article will provide some strategies you can use to engage in self-care with celiac disease.

What is Self-Care?

Simply put, self-care is the process of taking care of yourself. Contrary to what many people believe, self-care is not selfish or self-indulgent. It’s a critical part of maintaining your mental health so that you can do your job, care for others, and do everything you need to do in a day.

While self-care is important for everyone, for people with celiac disease, self-care is even more important. Following a strict gluten-free diet can feel very isolating, and the physical symptoms you get if you accidentally eat something with gluten in it are painful and unpleasant.

In fact, studies show that sticking to a gluten-free diet can feel more difficult than treatments for other common conditions, which can sometimes lead to not following the gluten-free diet at all. This demonstrates how important self-care is to effectively manage celiac disease.

Tips for Celiac Disease Self-Care

Self-care can look different for everyone, and only you can determine what self-care activities will be most beneficial for you. Here are four celiac disease self-care activities that you may find helpful.

Work with a Celiac Dietitian

One of the most difficult parts of having celiac disease is learning how to follow a gluten-free diet. Luckily, you don’t have to go it alone. A celiac dietitian can provide valuable advice about how to follow a gluten-free diet. When you work with a celiac dietitian, you’ll not only learn how to follow a gluten-free diet at home but also how to follow a gluten-free diet when traveling and eating out.

At Blue Tree Nutrition, we have years of experience working with people with celiac disease. Click here to get in touch and book an appointment with our dietitian.

Join a Celiac Disease Support Group

Having celiac disease and having to follow a gluten-free diet can feel very lonely and isolating. Consider joining a celiac disease support group to meet other people who will understand exactly what you’re going through.

To find a celiac disease support group in your area, visit the National Celiac Association website to search for support near you.

Practice Self-Compassion

Despite your best efforts to eat gluten-free, there are going to be times that you accidentally eat gluten and end up with unpleasant symptoms. In these moments, try to be gentle with yourself. You’re doing your best, and you have nothing to be ashamed of.

A practice that can help with self-kindness is self-compassion. There are three important elements of self-compassion:

  • Self-kindness vs. self-judgement
  • Common humanity vs. isolation
  • Mindfulness

With self-kindness, you extend the same kindness to yourself that you would extend to a loved one in a similar situation. This means that instead of getting down on yourself for accidentally eating gluten, you go easy on yourself and remind yourself that you’re not a bad person for accidentally eating gluten.

With common humanity, you recognize that you’re not the only person with celiac disease to have “glutened” themselves. Accidentally eating gluten is a common experience with celiac disease, and it doesn’t mean you’re a failure at managing your symptoms.

Finally, mindfulness means taking a balanced approach to your negative emotions. Mindfulness means being non-judgemental and simply observing your thoughts and feelings without seeking to suppress or deny them.

If you do accidentally eat gluten, try extending self-compassion towards yourself rather than getting down on yourself.

Develop a Self-Care Plan

Self-care can often fall by the wayside if we don’t actively plan for it. Sit down and list all the self-care activities you enjoy and plan to make time to complete a few per week.

You may also find it helpful to develop a self-care plan to care for yourself after accidentally eating gluten. This could include some simple meals that are easy on your gut, resting, and using a heat pack to soothe your digestive system.

Final Thoughts

If you’re living with celiac disease, self-care is an important part of staying well. From joining a support group to showing yourself self-compassion, self-care is vital for your mental health when living with celiac disease.

If you’re newly diagnosed with celiac disease or if you’re struggling with the gluten-free diet, a celiac dietitian can help. At Blue Tree Nutrition, we have experience working with many people with celiac disease. Click here to get in touch and book an appointment with our dietitian today.

"Processed food" has become a catch-all term for foods we're told to avoid, but food processing isn't automatically a bad thing.

Technically, many foods you probably enjoy regularly are processed. Frozen vegetables, canned beans, yogurt, nut butter, and whole-grain bread have all been changed from their original state in some way.

So when research links processed foods to certain health concerns, it's important to understand what kind of processing we're talking about.

Much of the recent research has focused specifically on ultra-processed foods (UPFs). Diets containing large amounts of these foods have been linked to a range of negative health outcomes, including digestive and metabolic health issues, inflammation, and heart disease.

This article will review what we know so far and give you tips for including more whole foods in your diet.

Processed vs. Ultra-Processed Foods: Understanding the Difference

In food and nutrition research, a system called the NOVA classification is often used to group foods according to the type and extent of processing they undergo.

Minimally processed foods include fruits, vegetables, eggs, milk, and plain grains that may have been washed, frozen, pasteurized, dried, or otherwise prepared without significantly changing them from their original state.

Processed foods are generally made by adding ingredients such as salt, sugar, or oil. Examples include canned vegetables, cheeses, or freshly made breads.

Finally, ultra-processed foods are industrial formulations containing ingredients or additives not typically used in home cooking. Examples include many sodas, packaged snacks, instant noodles, candies, and some ready-to-eat meals.

This distinction is important because simply avoiding all processed foods would mean missing out on many convenient and nutritious options (such as canned beans and vegetables).

It's also important to recognize that there's considerable variation among foods categorized as UPFs. For example, a packaged whole-grain bread and a soda may both meet the criteria for ultra-processing under the NOVA classification, despite having very different nutritional profiles. 

Instead of deciding not to eat a food simply because it's processed, it can be more useful to look at the bigger picture and consider what nutrients the food provides and how it fits into your overall diet.

How Can Ultra-Processed Foods Affect Digestion?

While we're still uncovering exactly how UPFs affect the digestive system, one possibility is that they lack fiber.

Some diets high in UPFs are lower in naturally fiber-rich foods like fruits, vegetables, whole grains, beans, lentils, nuts, and seeds. You probably know fiber is important for staying regular, but certain types of fiber (known as prebiotics) act as food for the beneficial bacteria living in your gut. A diet lower in fiber may therefore affect both digestion and the health of your gut microbiome. 

There's also research currently examining the effects of common additives found in UPFs, such as certain emulsifiers and artificial sweeteners. However, most of the research linking these additives to negative effects on the gut microbiome and intestinal barrier has been conducted in vitro (test tube) or animal studies, so more research is needed before we can confirm whether these additives are harmful in humans.

Finally, some studies have found links between UPF intake and certain gut conditions. For example, a large systematic review and meta-analysis found that higher UPF consumption was associated with an increased risk of developing Crohn's disease.

However, there's still a lot we don't know about how UPFs impact gut health, and more research in humans is needed to understand which food components or other dietary factors may be responsible.

UPFs and Inflammation

Chronic, low-grade inflammation has been linked to the development of several chronic diseases, prompting researchers to investigate whether diets high in UPFs could contribute to inflammation.

Here are a few possible explanations:

  • A diet high in UPFs may contain fewer foods rich in fiber, vitamins, minerals, and phytochemicals, which are associated with better overall diet quality.
  • A diet high in UPFs can also contribute significant amounts of refined carbohydrates, saturated and trans fats, sodium, or added sugars.
  • Certain ingredients in UPFs may alter the gut microbiome and promote gut inflammation.

However, much of the evidence connecting UPF intake with inflammation and chronic disease is observational. Studies like these can identify patterns, but they can't always tell us whether UPFs specifically are responsible or whether other differences in diet and lifestyle contribute to the association.

UPFs and Overall Health

The research on UPFs becomes more conclusive when we zoom out to consider overall health.

A 2024 umbrella review published in The BMJ found that higher exposure to UPFs was linked with increased risk across several health outcomes, with some of the strongest evidence involving heart disease, type 2 diabetes, mental health outcomes, and overall death rates.

However, it's important to note that the quality of the studies included in the review varied considerably. Only four of the 45 studies they reviewed received a moderate-quality rating; most were rated low or very low quality.

That said, there is some experimental evidence to consider. A small but well-controlled study of 20 adults found that those eating UPFs consumed an average of 500 additional calories per day and gained about 2 pounds. They lost a similar amount of weight when eating the minimally processed diet. The study showed that something about the UPF dietary pattern encouraged greater calorie intake, but it couldn't identify exactly which UPF component was responsible.

Do You Need to Stop Eating UPFs?

UPFs can provide valuable nutrients, and all foods classified as UPFs are not nutritionally identical. Instead of trying to eliminate all foods that qualify as UPFs, consider your overall dietary pattern. For example:

  • Are you including fruits and vegetables throughout the day (fresh, frozen, or canned)
  • Are you choosing whole grains and other fiber-rich foods regularly?
  • Do you include beans, lentils, nuts, and seeds in your diet?
  • Do you compare packaged foods based on what nutrients they actually provide rather than assuming that processing alone determines their nutritional value?
  • Do you use convenience foods like canned beans and vegetables to make balanced meals easier, rather than feeling overwhelmed trying to prepare everything from scratch?

If UPFs currently make up a large portion of your diet, you don't need to overhaul everything overnight. Instead, try adding more minimally processed, nutrient-dense foods alongside the foods you already enjoy.

The Bottom Line

Food processing exists on a spectrum, and processed doesn't automatically mean unhealthy.

Research suggests that diets high in UPFs are associated with several health concerns, but researchers are still working to determine why these associations exist and whether all foods classified as UPFs carry the same risks.

Rather than fearing individual foods, focus on your overall dietary pattern. A diet built around a variety of fiber-rich plant foods, adequate protein, and nutrient-dense choices can still leave room for the occasional UPFs.

If you need help incorporating more whole foods into your diet, a dietitian can help. Click here to book an appointment with us at Blue Tree Nutrition.

 

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Hello, I am

Valerie

My name is Valerie Polley. I am a Indianapolis-based registered dietitian and owner of Blue Tree Nutrition. I consult with clients both local and far away.
I have a bachelor’s degree in nutrition from Purdue University and I have been practicing for 20 years.
I thoroughly enjoy helping clients through their gut health journey. I see a range of GI issues including, but not limited to celiac disease, IBS and SIBO. I also specialize in the FODMAP elimination diet.