Celiac Disease Self-Care

by Valerie Polley | Jun 17, 2023 | 0 comments

If you’ve been diagnosed with celiac disease, you’re probably familiar with the gluten-free diet. For people with celiac disease, following a gluten-free diet is an essential part of managing the disease. But the gluten-free diet is quite restrictive, which can lead to feelings of treatment burnout. That’s where celiac disease self-care comes in.

For people with celiac disease, self-care is incredibly important for managing the emotional side effects of following such a restrictive diet. This article will provide some strategies you can use to engage in self-care with celiac disease.

What is Self-Care?

Simply put, self-care is the process of taking care of yourself. Contrary to what many people believe, self-care is not selfish or self-indulgent. It’s a critical part of maintaining your mental health so that you can do your job, care for others, and do everything you need to do in a day.

While self-care is important for everyone, for people with celiac disease, self-care is even more important. Following a strict gluten-free diet can feel very isolating, and the physical symptoms you get if you accidentally eat something with gluten in it are painful and unpleasant.

In fact, studies show that sticking to a gluten-free diet can feel more difficult than treatments for other common conditions, which can sometimes lead to not following the gluten-free diet at all. This demonstrates how important self-care is to effectively manage celiac disease.

Tips for Celiac Disease Self-Care

Self-care can look different for everyone, and only you can determine what self-care activities will be most beneficial for you. Here are four celiac disease self-care activities that you may find helpful.

Work with a Celiac Dietitian

One of the most difficult parts of having celiac disease is learning how to follow a gluten-free diet. Luckily, you don’t have to go it alone. A celiac dietitian can provide valuable advice about how to follow a gluten-free diet. When you work with a celiac dietitian, you’ll not only learn how to follow a gluten-free diet at home but also how to follow a gluten-free diet when traveling and eating out.

At Blue Tree Nutrition, we have years of experience working with people with celiac disease. Click here to get in touch and book an appointment with our dietitian.

Join a Celiac Disease Support Group

Having celiac disease and having to follow a gluten-free diet can feel very lonely and isolating. Consider joining a celiac disease support group to meet other people who will understand exactly what you’re going through.

To find a celiac disease support group in your area, visit the National Celiac Association website to search for support near you.

Practice Self-Compassion

Despite your best efforts to eat gluten-free, there are going to be times that you accidentally eat gluten and end up with unpleasant symptoms. In these moments, try to be gentle with yourself. You’re doing your best, and you have nothing to be ashamed of.

A practice that can help with self-kindness is self-compassion. There are three important elements of self-compassion:

  • Self-kindness vs. self-judgement
  • Common humanity vs. isolation
  • Mindfulness

With self-kindness, you extend the same kindness to yourself that you would extend to a loved one in a similar situation. This means that instead of getting down on yourself for accidentally eating gluten, you go easy on yourself and remind yourself that you’re not a bad person for accidentally eating gluten.

With common humanity, you recognize that you’re not the only person with celiac disease to have “glutened” themselves. Accidentally eating gluten is a common experience with celiac disease, and it doesn’t mean you’re a failure at managing your symptoms.

Finally, mindfulness means taking a balanced approach to your negative emotions. Mindfulness means being non-judgemental and simply observing your thoughts and feelings without seeking to suppress or deny them.

If you do accidentally eat gluten, try extending self-compassion towards yourself rather than getting down on yourself.

Develop a Self-Care Plan

Self-care can often fall by the wayside if we don’t actively plan for it. Sit down and list all the self-care activities you enjoy and plan to make time to complete a few per week.

You may also find it helpful to develop a self-care plan to care for yourself after accidentally eating gluten. This could include some simple meals that are easy on your gut, resting, and using a heat pack to soothe your digestive system.

Final Thoughts

If you’re living with celiac disease, self-care is an important part of staying well. From joining a support group to showing yourself self-compassion, self-care is vital for your mental health when living with celiac disease.

If you’re newly diagnosed with celiac disease or if you’re struggling with the gluten-free diet, a celiac dietitian can help. At Blue Tree Nutrition, we have experience working with many people with celiac disease. Click here to get in touch and book an appointment with our dietitian today.

With summer here, many people are getting excited about upcoming vacations. But for people with digestive issues, symptoms like constipation and bloating are often unwelcome travel companions. Traveling disrupts our body's natural rhythms and daily habits, which can lead to digestive chaos.

This article will help you understand how sudden changes in hydration, diet, and airplane cabin pressure impact the gut, as well as provide practical, evidence-based tips for keeping your gut happy on the road.

The Perfect Storm for Constipation: Fluid and Fiber Drops

One of the biggest contributors to digestive issues like constipation when you're traveling is a change in your normal hydration and fiber intake patterns. Here's how each affects your gut.

Inconsistent Hydration

Disrupted routines often lead to forgetting to drink water. Plus, strict airport security rules mean you can't carry a full water bottle through security checkpoints. Travelers often intentionally avoid drinking to skip using tiny airplane toilets or unfamiliar public restrooms. Finally, plane cabins are incredibly dry, which can quickly lead to dehydration.

The result: When the body is dehydrated, the colon absorbs more water from food waste, leading to hard, dry, and difficult-to-pass stools.

Reduced Fiber Intake

Most people in the United States don't get enough fiber at the best of times, and traveling only makes this worse. Convenience foods at airports, gas stations, and roadside stops are typically highly processed, high in sodium, and low in fiber. Experiencing local cuisines often means prioritizing rich restaurant meals over fresh fruits, vegetables, and whole grains.

Not getting enough fiber quickly contributes to constipation because fiber is essential for adding bulk to stool and keeps things moving through the digestive tract. A sudden drop in fiber stalls peristalsis (the wave-like muscle contractions in the gut), leading to less frequent bowel movements. 

The Combined Effect

The simultaneous drop in both fluid and fiber creates a "logjam" effect in the intestines. Not having enough fluid and fiber slows the movement of waste through your gut. This leads to more water being absorbed from the stool, resulting in hard, difficult-to-pass stool. The traffic jam effect makes acute constipation one of the most common (yet preventable) gut-related travel complaints.

Cabin Pressure and Bloating

Have you ever noticed that you get more bloated during air travel than other forms of travel? No, you're not imagining things. This is due to a law of physics called Boyle's Law. Simply put, this law of physics states that as atmospheric pressure decreases, the volume of a gas naturally increases.

Here's how that works with your gut and air travel. Airplane cabins are pressurized to simulate an altitude of around 6,000 to 8,000 feet. Because of this shift, the gas that's already present in your gut expands during flight. This rapid gas expansion stretches your intestinal walls, leading to pain, cramping, and bloating often referred to as "airplane belly."

Additionally, several common travel habits can aggravate this trapped gas. Drinking carbonated beverages before or during the flight, chewing gum (which leads to swallowing excess air), and remaining stationary for hours on end all trap and intensify the expanding gas.

Tips for a Happy Travel Gut

Fortunately, a few small tweaks to your travel routine can make a huge difference in whether you end up constipated and bloated while traveling.

Pre-Flight and In-Transit Tactics

  • Hydrate on the go: Bring an empty, reusable water bottle through airport security and fill it once you reach the departure lounge (most airports now have water bottle filling stations). Aim for consistent sipping throughout your journey to keep hydrated.
  • Be mindful of foods that can worsen bloating: Avoid fizzy drinks, heavy or fried foods, and gas-producing foods like beans, broccoli, and cabbage, for at least 24 hours before your flight. This can reduce the amount of gas present in your gut, which can reduce the bloating associated with a drop in cabin pressure.
  • Pack smart snacks: Since airport snacks are typically high in sodium and low in fiber, bringing your own high-fiber, travel-friendly snacks can help boost your fiber intake. Consider packing dried chickpeas, almonds, dried fruit, or on-the-go fiber supplements to bridge the gap.

On-Arrival Habits

  • Prioritize fiber: While there's nothing wrong with enjoying the local cuisine wherever you're traveling, try to prioritize fiber at your destination whenever possible. I recommend starting your day with a high-fiber breakfast, such as oatmeal with fruit, nuts, and seeds.
  • Get moving: Try to avoid being sedentary on arrival. Going for a leisurely walk helps stimulate intestinal motility and releases trapped gas (there's a reason a short walk after meals is commonly called a "fart walk"!).
  • Keep a regular sleep schedule: Vacation can throw a serious wrench into your routine, but wherever possible, try to maintain it. Gut issues can be worsened by poor sleep, so sticking to your routine can help support gut comfort on vacation.

Final Thoughts

Travel naturally changes our dietary habits and challenges our digestive system through abrupt changes in cabin pressure, but digestive discomfort doesn't need to ruin your vacation. By being mindful of your fluid and fiber intake, staying active, and making strategic changes in pre-flight eating habits to minimize the effects of cabin pressure changes, you can keep your digestion on track and enjoy every minute of your vacation.

If you're worried about an upcoming trip and need personalized strategies for managing your digestion on vacation, I'd love to help. You can get in touch with me at Blue Tree Nutrition to book your appointment with a registered dietitian.

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Hello, I am

Valerie

My name is Valerie Polley. I am a Indianapolis-based registered dietitian and owner of Blue Tree Nutrition. I consult with clients both local and far away.
I have a bachelor’s degree in nutrition from Purdue University and I have been practicing for 20 years.
I thoroughly enjoy helping clients through their gut health journey. I see a range of GI issues including, but not limited to celiac disease, IBS and SIBO. I also specialize in the FODMAP elimination diet.